Alzheimers care can quickly turn from a convenience into a nightmare. “It was then that realization dawned about exactly what our family was facing: Dad was a ward of the county and no longer in our care. For five days, [my father] remained in the psychiatric hospital, mostly in the highchair and strapped to a bed at night,” writes US News & World Report writer Kerry Hannon. Her father had been through all sorts of debacles in the nursing home. The 88-year-old had fought with orderlies, refused his medication, developed bed sores, come down with a Staph infection and would up in a psychiatric hospital. Once patients wind up in the psych ward, they’ll have a heck of a time getting them out again, since the law says a “severely mentally disabled person may be subject to involuntary examination and treatments” as medical personnel see fit.
Many American families face similar horrific scenarios when dealing with Alzheimers care facilities. “Hard-to-manage nursing home residents with Alzheimer’s and other dementia are often committed involuntarily from nursing home facilities to psychiatric units,” says Eric Carlson, an attorney with the National Senior Citizens Law Center in Los Angeles. However, the federal Nursing Home Reform Law mandates that the senior care facilities must provide a written notice 30 days prior to evicting someone. This written notice must also detail the appeal process and direct families to a local organization that may help them with their nursing home care rights. Carlson warns that families should look out for facilities that suffer a high turnover rate, which is a sure sign that the Alzheimer’s patient will not be receiving top quality care. He also adds that some facilities may use sedatives or restraints inappropriately, but not all establishments use these behavior modification mechanisms. “Many nursing homes now function completely restraint-free,” he explains.
Many families can hire nursing services for home if their elderly parents can generally get around the house, but may require extra assistance cooking, cleaning and running errands. However, Alzheimers care patients generally need more attention. They may forget their medication, wander out of the house or become panicked when alone. There are several different types of long-term care facilities to choose from. Retirement housing gives patients their own apartment that includes a kitchen, living room, bathroom and bedroom, but staff is in the building for emergency care. This option may work for patients in the early stages of the disease who wish to remain independent but not manage a whole home. Assisted living settings are best for people who need help with personal care and guidance, but may not require significant medical help. Specialized dementia care facilities are for people who might benefit from activity-based programming, specialized staff and memory care. Lastly, a nursing home will provide 24-hour skilled care, with special units for people with Alzheimer’s.
Many families wonder how much they can expect to pay for their loved one’s Alzheimers care. The average price of dementia care in assisted living facilities is around $56,316/year for a private bedroom (or about $154/day), according to the National Investment Center for the Seniors Housing and Care Industry. However, a top-caliber establishment with medical professionals from John Hopkins Medical Center (like Cooper Ridge in Maryland) runs $205 - $311/day for assisted-style living and $385/day (or $140,525/year) for nursing home care. Most families will pay privately, although some Medicaid patients may be accepted into the nursing home. Despite the hefty price tag, it’s not uncommon for facilities to encounter a waiting period of several weeks.
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